Saturday, November 7, 2009

Charlie, Brooklyn and I spent the afternoon in Chicago for Brooklyn's Rett Syndrome Natural History Study appointment today so I did not make it down to the NICU today but I just realized I did not update everyone yesterday either.
It was a ROUGH day. Boston was put back on oxgyen :( He dropped his stats down into the 30's which should be at 100. At one point in the morning he turned blue - not something a mom does well with!! They ran some tests and everything seems to be ok, other than he is a preemie and still needs some time.
The good news is that he has started feeds again, one teaspoon every three hours and is handling them ok right now. Please pray that his lungs continue to get stronger and that his belly continues to handle the feeds ok.


  1. That sweet baby boy is in our thoughts and prayers. So are you!!! We are praying that he is home where he belongs VERY soon! Hang in there Kel. We are sending love, prayers, and strength your way. Wish we lived closer.

  2. Praying for you sweet Boston. That's awesome news about starting feeds.

  3. Thinking of you and praying EVERY SINGLE day!!!! Love you----