O.k. I need your help!! I know all of you out there that follow this blog love Kelly and the entire Butler family. Today in the Herald Republican, our local newspaper, there is an article about "Extreme Makeover:Home Edition" They are looking for a deserving Indiana family!!! I can't think of anyone more deserving!!!
Don't get me wrong...I am not saying that my sister's house is shabby by any means it is just that it is NOT handicapped accessible. Their family has been, well, I am not sure how to put this (my sister is the writer of the family) burdened with many difficulties over the past few years. As you well know Brooklyn has a diagnosis of
Rett Syndrome which confines her to a chair and will soon need a wheel chair to move about. Charlie has recently discovered he has a rare disease known as
Bechets...who knows what this will bring, even the doctors can't say for sure. Reading about it would stress any wife out, it can be a crippling disease and even lead to blindness. He currently battles chronic pain on a daily basis. Finally their latest bundle of joy, our lovable Boston who has been diagnosed with Down Syndrome.
One family should not have to endure such heartache not to mention all the therapists that are in and out of their house on a weekly basis :)
Our friend Janet contacted me to try and spread the word... We want to TRY and get them nominated for a makeover to help make their lives a little less of a struggle. We need your help! I am asking as many people as possible to write a letter of recommendation for them. In your letter explain how you know them and why you feel they are deserving. You can e-mail me your letters at kristinsmith8405@yahoo.com or directly to the show at castindiana@gmail.com It might be a great idea to send it both places. If the show sees what an AMAZING family they are and hear from all of you maybe they will agree with us that Kelly and her family should be the next family in Indiana to receive a home makeover!!
I also want to point out that Kelly works for the non-profit organization
girlpower2cure She raises money to help find a cure for
Rett Syndrome. Unfortunately she no longer has an office, it has become Boston's nursery. (Her desk is literally in his closet) Wouldn't it be amazing to have a house that could meet all their needs:handicap accessible, maybe a therapy room for the kids and a home office for Kelly!
Drop me an e-mail with any questions...I hate to put pressure on you but the entries are due this Wednesday, February 10!!!
Thank you for all your love and support,
Kristin (McNamara) Smith
I want to say a HUGE thank you to Kristin (my sister), Racheal (friend at Trine), Trisha (Charlie's co-worker at Wells) and Amy (girls night gal) for ALL the GREAT clothes. These ladies have provided me with clothes for Boston's first few months of life with their "hand me downs." You all are AWESOME - I am sure you have all seen some of your clothes on the blog already!!! Hugs to you!
I know it is the way he is sitting, but he looks like such a chunky monkey!!
Baby Be Blessed is an amazing site that I hope you all take a moment to check out. They have beautiful dolls that every child should own! Their mission is to "spread the word of God....one doll at a time!" Another part of the site is their "Give a Blessing" page where they choose a family to feature each month. My friend (and fellow Rett Mom) Bridget MacDonald submitted Boston's story and we were chosen to be the featured family for February! Bridget did an amazing job telling our story (thank you Bridget!)
/>